Independent participant education No recruitment, screening, or referrals

A participant’s field guide

Understand a clinical study before you volunteer.

Translate a study listing into the questions that shape your decision: what you will do, what could change, what it may cost, how your information may be used, and how to stop participating.

Sources Articles cite FDA, NIH, HHS/OHRP, ClinicalTrials.gov, and published participant research. Find source-check dates beside each guide’s references.

Read the study recordRead status, design, arms, eligibility, locations, and history.

Calculate the burdenInclude travel, schedule constraints, recovery, diaries, and unpaid time.

Use your rightsAsk questions, take time to decide, keep a consent copy, and raise concerns.

Find a guide

Start with your question

Get specific questions to ask, worked examples, and links to official guidance.

01

Is this study real?

Verify the organization, investigator, official record, communication channel, and consent path before sending records.

Verify the study and site →
02

What will participation require?

Estimate time for visits, travel, home tasks, preparation, and recovery. Record restrictions and fixed visit times.

Estimate time and expenses →
03

What does the consent leave unclear?

Find the sections that control procedures, risks, alternatives, privacy, costs, payment, injury, and withdrawal.

Review the consent →
04

How should I compare two studies?

Compare compensation with time and cost. Review medical risk, possible benefit, and alternatives as separate decisions.

Use the comparison worksheet →

During and after participation

Plan for the rest of the study

Learn what participants report. Prepare for access needs, injury-related costs, final visits, and the wait for results.

05

What do participants report?

Read findings from participant interviews and surveys, including who took part and what the findings can tell you.

Explore participant evidence →
07

What support will participation require?

Plan accessible communication, companions, caregivers, transportation, remote technology, privacy, and reimbursement.

Build the support plan →
08

What happens after the last visit?

Confirm final safety checks, return equipment, settle payments, arrange continuing care, and find study results.

Complete the closeout checklist →
A person reviewing a printed form with a pen
Keep a copy of the consent form and write down your questions.

Study information

Know which source answers which question.

Public study record
Use it to identify the sponsor, study design, eligibility summary, locations, recruitment status, and posted history.
Informed consent materials
Use them to examine the participant experience: procedures, risks, alternatives, privacy, costs, compensation, injury information, and contacts.
Study team answers
Use them to resolve current, site-specific logistics. Ask for written confirmation when timing, reimbursement, or restrictions affect your decision.
Learn how to read a study record

Sources and editorial standards

Know where the information comes from

Clinical Forage links material claims to official guidance and identified research, states evidence limits, identifies editorial ownership, dates substantive reviews, separates education from medical advice, and publishes a correction path. No study pays for placement or referrals.

Read the editorial standards →